This section is dedicated to keeping you updated on research in the epilepsy world. So much about epilepsy remains a mystery. One day we hope a cure for seizures will be found. Research studies need people with and without epilepsy to help solve this complicated disorder. Please see if you can help out with any of the research initiatives below.
EPGP is a research project funded by a federal grant from the National Institutes of Neurological Disorders and Stroke to help understand epilepsy. The goals are to understand why some families have epilepsy and to help researches find more effective treatments for epilepsy. This study needs to enroll 6750 people so go to www.epgp.org to see if you or someone you know are eligible to join this landmark study. You may also contact Dr. Edward Novotny at Seattle Children’s Hospital at 206-987-2078.
Are you an adult living with focal or generalized epilepsy? A new clinical trial is looking at how effective and safe orally-inhaled alprazolam (also known as STAP-001) is in people 18 years of age or older with focal or generalized epilepsy when given at the time of a seizure episode. This study is commonly referred to as StATES (Staccato Alprazolam Terminates Epilepsy Seizures).
Led by principal researcher, Dr. David Vossler of the Neuroscience Institute at UW Medicine/Valley Medical Center in Renton, WA this study is held at the Rainier Clinical Research Center also located in Renton, WA. The research studies include:
People with epilepsy interested in participating in the trial should contact Carole Burton, RN or Catherine Talbot-Lawson, RN at Rainier Clinical Research Center at 425-251-1720.
To learn about other trials recruiting participants, click on the link below. https://www.epilepsy.com/clinical_trials
Antiepileptic drugs (AEDs) are the main treatment for seizures in people with epilepsy. The first AED, phenobarbital, was discovered in 1912 and the company that developed it gave it the brand name Luminal. Between 1938 and 2016, 25 more brand name AEDs were approved by the US Food and Drug Administration (FDA). The generic name is the chemical name for the medication. The brand name is created by the company that first discovers and patents the medication. A patent gives that company the right to be the only one that sells that drug for many years. After the patent expires, other companies can sell the generic drug. Generic drugs are usually less expensive. Today, all AEDs approved by the FDA before 2005 are available as generics.
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